Pam Arnsberger
Professor, University of Hawaii School of Social Work and
Fulbright Award Recipient Queens University, Belfast
Coming from the University of Hawaii to Queens University, Belfast
(QUB) was more than just a change of weather. The Changing Ageing
Partnership at QUB provided me with a new model for interaction between
researchers, service providers and older consumers. The project,
established by Atlantic Philanthropies to improve the quality of life
for older people in Northern Ireland, funds over 20 research projects
throughout QUB and I was made part of the research launches. At the
first research launch in February I was asked to introduce Dr. Karola
Dillenburger as she presented the results of her project on older people
caring for adult sons and daughters with disabilities. It was my first
opportunity to compare support systems for carers in the U.K. with those
in the U.S. and it raised issues I continued to explore over my time in
Northern Ireland.
During the six months I was at QUB I also had the opportunity to hear Brice Dickson and Lisa Glennon speak on Making Older People Equal: Reforming the law on access to services in Northern Ireland and Jonathan Skinner on Senior Citizen Social Inclusion through Social Dance.
I also heard about work in the Western Health Action Zone in Derry with
Siobhan Sweeney and Colette Broll and about fruit and vegetable
consumption among older people in Northern Ireland from Dr. Appleton and
J.V. Woodside. The work done by Western Health Action Zone on engaging
men in physical activity and Dr. Skinner’s work on dance and the older
person reflected some of my own interests in aging and health promotion
and I was able to incorporate some of their findings into a grant which
was then submitted to the U.S. Centers for Disease Control and
Prevention
The opportunity to participate as a member of
the research committee on a survey for Engage with Age on loneliness and
isolation further expanded my horizons. After I was invited to speak on
my work at a meeting of an Engage with Age chapter, I asked to be
allowed to join them in their weekly meetings. This blossomed into my
being included in lunches, social opportunities and various outings.
This participation gave me the opportunity to hear about the day-today
lives of older adults in Belfast as well as the quality and type of
services and programs they needed. I have gotten to know this group as
friends and have listened as they have struggled with issues such as:-
- Why has my gas bill tripled over the last month?? I can’t even keep warm now.
- I live in sheltered housing, but I am still so lonely. Sometimes I don’t speak to another person all day.
- What will happen to my wife now that she fell and I have Alzheimer’s disease and can’t care for her at home?
- After a lifetime of physical activity how can I continue it now that I’m blind?
...all of which reminded me that ageing and its accompanying problems are indeed a universal concern.
Among other activities, I also
- Met with the Chinese Welfare Association and discussed with them the special needs of Asian elderly in Northern Ireland
- Visited an Alzheimer’s housing program run by Praxis Care
- Presented on the U.S. health care system as
compared to the Cuban health care system for the Belfast Royal Hospital
Center of Excellence in Public Health.
- Presented the results of my research to The City of Derry Bogside and Brandywell Health Forum and
- Accepted an invitation by LUMSA University to
speak at a conference in Taranto, Italy on long term care and geriatric
social work.
In order to complete my own research project, I
was given unrestricted access to the Northern Ireland Life and Times
Survey data from 2006 which included a carer’s supplement. This allowed
me to compare previously collected data on carers in the U.S. and China
with carers in Northern Ireland on a measure of self-assessed health
status utilizing some rather complex methodological techniques
(meta–analysis and ordinal probit analysis) that I wanted to perfect as
part of my proposed Fulbright research project. Overall as I review my
time here I am left with the following findings and impressions:
- In the UK there is transparency and a
willingness to share data itself (not just findings). There is also more
emphasis on trying out interventions and less on experimental research
methodology than in the United States. This leads to far more community
level interventions, rather than the small treatment and control group
studies we have in the U.S. As a result the stress is on external
validity rather than internal reliability, an emphasis I applaud. I also
saw greater use of creative and varied qualitative methodologies. As
the profession of social work moves towards evidence based practice, we
all need to continue to assess interventions in terms of not only simple
success or failure, but by assessing groups who did or did not benefit,
the costs (both formal and informal) to achieve the benefit, and the
conditions under which these outcomes occurred.
- The National Health Service, as well as the
Health and Social Care Trusts and the charities, have a strong
commitment to provide long term care options and far more available
sheltered housing opportunities than in the U.S. However it seems that
inexpensive options to increase health related quality of life in these
settings are limited. Through the use of ongoing recreational and
therapeutic activity programs in housing and institutional settings,
improvements in morale and reduction in isolation could perhaps be made.
- Institutional care, which, while it does not
impoverish elders as it does at home, seems to be of the same quality as
the U.S. Furthermore, it does not seem to include some of the
protections (e.g. required reporting of elder abuse and a system in
place to process those complaints) that are available in the U.S.
whether in institutional care or in the community. Among these systems
would notably be organized adult protective services units that are
mandated within U.S. social services departments and nursing home
ombudsmen programs.
- An emphasis on addressing issues of
loneliness and social isolation, that has been apparent across many age
related organizations recently, seems well chosen. In Italy, as well as
here, it was interesting to see that combating social exclusion of
elders had emerged as a priority. It is clear that older adults are not
availing themselves of even the social opportunities that do exist and
often do not seem to feel part of the society they helped to build.
Cross nationally researchers need to begin to ascertain barriers to
participation whether they be systemic (e.g. accessible transportation);
environmental (housing design); individually based (e.g. physical
limitations, depression or mild cognitive impairment) or a reflection of
societal values (a culture of self-reliance rather than
interdependence).
- Indications are that Northern Ireland will
soon have a multi-ethnic aging society. Increasing numbers of people
will come from the EU, South Asia, Africa and beyond for work, family or
other reasons and will age in place. U.S research can help provide some
clues to the sensitive issues that will be raised and possible ways to
address them. Additionally organizations that represent diverse groups,
such as the Chinese Welfare Association, need to be ‘at the table’. A
multicultural ageing population is coming but there is time to plan for
cultural and linguistically specific services that may be needed in the
future.
- Northern Ireland (and the Republic) are
developing an innovative model for participation of their older
population in the political process. Compared to the U.S. this vision
involves real collaboration. It should be encouraged to grow into areas
such as hiring older people to staff projects and committees, as well as
just serve on them. Research here is also more inclusive. Research
launches and meetings that I have attended have made efforts to reach
out to the senior community. This has resulted in lively exchanges, with
valid points and issues being raised by older adults that the
presenters may not have considered. I believe researchers have learned
as much from (and been challenged by!) the audiences of those sessions
as have the audiences from the researchers... a true exchange.
- Interestingly my own research showed that at
least on a measure of self-assessed health status, carers in NI are
doing better than in either China or the U.S. (in spite of lower
incomes). Characteristics of carers were compared using two different
methods and in both, it appeared that NI carers were benefitting from
carer support policies that have been enacted in the past 10 years.
Those items that have the strongest positive effect on self-assessed
health status (other than that the carer does not have a chronic health
problem) were: income; being employed fulltime; not having to provide
medical care; not having sleep difficulties and not experiencing
emotional strain. I hope that this research provides direction for
interventions to assist carers across all three countries.
- Finally, this opportunity provided
inspiration for me to pursue new research and program options. Direct
payments to carers, carer allowances, available respite services for
carers (including older adults caring for those with learning
disabilities), women’s pensions at an earlier age, new designs for
sheltered living arrangements for elders and people with Alzheimer’s
Disease and the making music and dance available to elders are all
exciting ideas for me to explore in my ongoing work.
End of Education and Careers section.