Sheila Peace
School of Health and Social Welfare
The Open University
In this issue of Generations Review you will find the new
BSG Ethical Guidelines which I hope you will find a valuable
introduction to many of the ethical issues that you should take on board
when developing research involving older people. In particular we focus
on developing an ethical statement for research and the agreement to
participate encompassing consent and confidentiality. The guidelines
build on work that has been developed in the Faculty of Health and
Social Care at the Open University (OU). We raise issues that are
commonly experienced by those undertaking gerontological research both
interactive and observational; consider some features that may arise in
participatory research, and establish some basic principles.
I have drawn upon my experience of the OU’s Human
Participants and Materials Ethics’ Committee where I have been a member
for the past four years. During this time the work of the Committee has
grown and grown. Our Chair, John Oates has been active in developing
the code of conduct and ethical principles of the British Psychological
Society and is a member of COREC (Central Office for Research Ethics
Committees). We are a Committee of academic and lay members, and we
consider proposals from all academics promising to give a response in
five days. This task is shared by everyone and at least three people see
each proposal. In recent years we have been considering more
post-graduate studies as well as advising academics on assignments set
in teaching that include a research component.
Being part of a committee that considers research
involving a wide range of people has led me to reflect on how the
experience of researchers from different disciplines can inform work
with older people. For example there are issues for those working with
children that involve parental consent and re-negotiation of consent
that may affect participation which raise issues concerning the use of
proxies that we may be familiar with. Of course, my other main
experience in relation to ethical committees comes from supervising PhD
students who wish to work with NHS patients and need to have their work
approved. My experience has been with Local Research Ethics Committees
(LRECS) and Multiple Research Ethics Committees (MREC). You will see
from the guidelines that these systems have changed in recent years.
There has been an attempt to simplify the process but many of us will
have faced the problems of the complex forms and waiting for clearance.
When developing these guidelines I was aware that
new developments are taking place all the time and that we will need to
undertake regular reviewing and updating of our guidelines. We would
also be interested in hearing from you. You might feel that we have
forgotten something; that you have a good example of an ethical issue
which may be of value to other members; or that there is in important
ethical code or reference that we should read. If you have anything to
add please send to Sheila Peace at S.M.peace@open.ac.uk