My Home Life Programme
Help the Aged & City University
My Home Life is a new UK programme led by Help the Aged,
National Care Forum and City University, aimed at improving quality of
life for those living, dying, visiting and working in care homes for
older people.
My Home Life (MHL) has adopted a m
ulti-level, multi-agency approach to disseminating a vision and creating
a positive culture for change to enable transformational practice
development within the care home sector and wider health and care
system. It is about working in true partnership with care homes to
engage them with the messages while also influences the external
environment within which the sector operates so that the evidence base
for quality of life in care homes is embedded in the mainstream.
The vision
At the heart of the MHL programme is an
evidence-based vision for care homes that was developed as a result of a
literature review commissioned by Help the Aged and National Care
Forum, to identify the positive practices that contribute to quality of
life in care homes. The review brought together 60 academic researchers,
members of the National Care Home Research and Development Forum (of
which many are also members of the BSG), key stakeholders from the
practice community and care home residents. The data gathered from this
exercise identified eight best practice themes which together offer a
vision for quality of life in care homes. These eight themes are
summarised in Table 1.
Table 1: The My Home Life Evidence-based Vision
1. Managing Transitions
Supporting people both to manage the loss & upheaval associated with going into a home and to move forward.
2. Maintaining Identity
Working creatively with residents to maintain their sense of personal identity and engage in meaningful activity.
3. Creating Community
Optimising relationships between and
across staff, residents, family, friends and the wider local community.
Encouraging a sense of security, continuity, belonging, purpose,
achievement and significance for all.
4. Sharing Decision-making
Facilitating informed risk-taking and
the involvement of residents, relatives and staff in shared
decision-making in all aspects of home life.
5. Improving Health & Healthcare
Ensuring adequate access to healthcare services and promoting health to optimise resident quality of life.
6. Supporting Good End of Life
Valuing the ‘living’ and ‘dying’ in
care homes and helping residents to prepare for a ‘good death’ with the
support of their families.
7. Keeping Workforce Fit for Purpose
Identifying and meeting ever-changing training needs within the care home workforce.
8. Promoting a Positive Culture
Developing leadership, management and expertise to deliver a culture of care where care homes are seen as a positive option.
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The vision is underpinned by ‘Relationship-centred Care’
that recognises the importance of seeing the care home as a community
where the quality of life of staff, family, friends and residents are
all crucial to improvements in practice. It suggests that everyone in a
care home needs to have a sense of security, sense of continuity, sense
of belonging, sense of purpose, sense of achievement and sense of
significance (Six Senses Framework – developed by Professor Mike Nolan
and colleagues at the University of Sheffield).
Getting research into practice: the challenge
There is clear evidence that much research
appears to have little or no impact on practice (Davies, Nutley, &
Smith, 2000). Getting research into practice is particularly challenging
for social care provision within the independent sector. The sector
often feels weary, overburdened with regulation and defensive in
response to the negative media profile that they receive. Funding for
educational programmes is sporadic at best, and in many care homes, a
culture of professional training and development may be absent.
Ownership of expertise within the care home sector
Crucial to its early success has been the
importance of allowing the sector ‘to own’ the programme. For decades,
the sector has had to react to the requirements of regulators,
commissioners and politicians, rather than owning the agenda themselves.
The evidence base for MHL was undertaken using an ‘appreciative
inquiry’ approach which emphasises examples of ‘what works?’ rather than
‘what doesn’t work?’. As a result MHL is profiling the positive
examples of practice and the expertise that is already out there in care
homes. It is about communicating back to the sector that this is their
expertise and their programme.
The response from the care home sector to date
has been very positive indeed with many care home providers wishing to
associate with the programme and welcoming the stance of celebrating the
good rather than dwelling on the bad examples of care home practice.
Care home managers value the MHL vision because it offers them:
- Evidence of what customers (residents) want
- A sense of what practice could look like
- An evidence base from which care homes can articulate decision-making
- A framework for identifying evidence of good practice for self-regulation
- An evidence base for inspectors / commissioners to assess practice
- Accentuating positive (disassociating from bad press)
Current activities of My Home Life
A key value for My Home Life is to work
collaboratively with all stakeholders to help us think creatively about
how we can best support the care home sector to get research messages
into practice. As a consequence we have:
- A steering group comprising key
representatives from the care home sector and the involvement of
residents to help shape the direction of the programme
- An advisory group of educational facilitators
/ training managers from the sector who advise on the content of
resouces going out to the sector
- Academic theme leads who support and advise on the evidence base and on examples of positive practice
- Regional workshops across the UK to explore
best practice with care home staff, commissioners, inspectors, residents
and relatives
As a result of this collaboration we are working
on 4 areas of activity: creating resources, developing networks,
supporting change, and maintaining momentum.
Creating Resources
MHL have worked with the sector to explore what
types of resources will actually help them in their practice. It became
clear that many care home managers do not have time to read lengthy
reports, and that any spare time they do have is seen as best spent
working on the floor with the care-staff. As a result we have developed a
range of resources tailored to different needs and with different
levels of detail.
We have found that by embedding research messages
into stories of practice we are really able to engage with care-staff.
One of the resources that we are developing is a series of MHL bulletins
which are targeted at care-assistants and include stories that they
have written about the positive work they are doing. The bulletin goes
out to 18,000 care homes across the UK and the feedback is that
care-staff are picking up the bulletin and reading it.
Developing Networks
A number of care home managers have often told
us that they feel very isolated in the work that they are doing. Many do
not get opportunities to share ideas, anxieties or good practice. As a
result, MHL is working in a number of regional areas to develop networks
of care homes who come together to discuss the evidence base for My
Home Life and share new ideas with us. The network is owned by the care
homes themselves who set the agenda. We have had fantastic support from
some of our theme leads who have been facilitating the local networks.
Supporting Change
The MHL team are conscious that resources alone
are not enough to change practice and so are engaged in other activities
to ensure that the vision is embedded in mainstream thinking and
practice. MHL are working with regulators, commissioners and
policy-makers to ensure that the requirements placed upon the care home
sector reflect the evidence base for quality of life: The Commission for
Social Care Inspection (CSCI) in England and the Care Commission in
Scotland are both supporting the programme. MHL materials have been sent
out to all inspectors in England and work is being undertaken to ensure
that the regulatory framework reflects the My Home Life vision. Work
with Local Social Services Commissioners is also underway. By engaging
with the wider system, care home providers can see the relevance of the
MHL vision in meeting their objectives.
Maintaining Momentum
MHL is constantly identifying opportunties to do
mutually beneficial work with key people (care home providers,
commissioners, inspectors etc.) with a shared interest in the sector.
For instance, we heard from Scotland that commissioners knew they should
be working with care homes, but did not always know how best to do
this. In England, an opportunity arose to put on a joint event between My Home Life and the Care Services Improvement Partnership (Deparment of Health, England) to explore Partnership Working between Care Homes and the NHS. Colleagues
from Scotland helped shape the event and findings from the event will
now be shared across the Nations, as the issues raised and solutions
highlighted are relevant to all.
Other work focuses on challenging the poor press
that care homes so often have to endure. We are continually seeking to
work with journalists to showcase the good work that is developing in
the care home sector.
My Home Life Spirit
We are grateful to BUPA Giving for our initial
funding and appreciate the way they have given us the freedom to work
with the care home sector to decide the agenda for change. My Home Life spirit is all about:
- Building upon energy, enthusiasm and best practice out there
- Collaborating, sharing, and realising a vision for change
To join the My Home Life Network and obtain a copy of the report, please contact Jo Edler on joanna.edler@helptheaged.org.uk or 020 7239 1881.
An executive summary, short report and full
literature review on which MHL is based, together with briefing papers
on each of the eight best practice themes, is available at www.myhomelife.org.uk together with a growing number of linked resources.
Reference
Davies, H.T.O., Nutley, S.M., & Smith, P.C. (eds) (2000). What works? Evidence-based policy and practice in public services. Bristol: The Policy Press.