Clare Abley
Nurse Consultant for Vulnerable Older Adults, Newcastle upon Tyne
I undertook a qualitative study to explore and subsequently increase
understanding of the social construction of patient-centred health and
social care for vulnerable older people living in the community. The
study involved focus groups held between September 2004 and December
2005 with older people, volunteers and health and social care
professionals. The discussions were recorded, transcribed and analysed
using methods informed by the constant comparative method (Glaser, 1965)
and by Wolcott’s (1994) three stages of qualitative data
‘transformation’, namely: description, analysis and interpretation. The
computer assisted qualitative data analysis software package NVIVO
(version 2.0) was used to store and manage data.
My findings led to a typology of co-existence of
patient-centred care and vulnerability in old age. This typology
separates vulnerability into two main concepts: insider and outsider.
Development and exploration of this typology led to three main
conclusions. Firstly, older people who feel vulnerable do not consider
their care to be patient-centred. Secondly, those older people who see
their care as patient-centred do not feel vulnerable. Thirdly, there is
inadequate evidence to support the construction of patient-centred care
for vulnerable older people from the perspective of professionals.
Reasons for this are discussed, one such reason being uncertainty on the
part of professionals working in the community as to what comprises
patient-centred care in the most complex cases.
Theoretically, my findings make a link between patient-centred
care and vulnerability in old age which has hitherto not been made.
These links are mostly with ‘insider’ vulnerability, highlighting and
therefore reinforcing previous research which has demonstrated an
important distinction between insider and outsider vulnerability. For
older people, the following are important parts of patient centred care:
‘getting back to normal’, improving their functional ability, being
made to feel good about themselves, and being treated in a way that
allows them not to feel as if they are getting old. It is recommended
that practitioners should ask older people if they feel vulnerable and
if so when and in what situations as part of the assessment process.
This would then allow them to target their input according to these
‘felt’ vulnerabilities.