Janet Leece
Open University
This thesis is about direct payments; the name given to cash payments
made by local authorities to disabled adults, to enable them to buy
their own care. Many people use their direct payment to become an
employer by recruiting a personal assistant to provide their support,
and it is this direct employment relationship, between disabled adults
and their employees, that is the focus of the thesis. The study examines
the history and policy of social welfare in Britain showing that the
use of cash payments has been a recurring theme in care provision, and
is part of an evolving process. The present government has demonstrated
ongoing commitment to the radical increase in the numbers of disabled
adults accessing user-controlled support, such as direct payments. In
order to explore the implications of this policy, a comparison of direct
and non-direct employment, using data from open-ended interviews was
undertaken.
The study investigates the affect of cash and
direct employment on the support relationship in one local authority in
England. It uses a grounded theory approach, with two questionnaires to
measure job satisfaction and stress, and in-depth interviews with
respondents. It explores and compares the experiences of eight direct
payment relationships with eight traditional service delivery homecare
relationships. The research provides a comparison between direct and
non-direct employment, together with an examination of the experiences
of both parties in the relationship.
The analysis of the data reveals the inherent
complexity of care relationships and shows the importance of the concept
of power in helping to understand the impact of direct employment on
these relationships.
Key words: direct payments; disabled people; older people; care relationship; support relationship; user-controlled support