Marjorie Coote Professor of Health Care for Older People
Sheffield Institute for Studies on Ageing
Introduction
In this article, I describe the background to the
development of the National Service Framework (NSF) for Older People in
England (Philp, 2001), its implementation in the seven years since its
publication in 2001, the main achievements to date and my views about
what remains to be done in the last three years of its life as a ten
year programme for reforming the culture and system of health and social
care for older people.
In 1998, I was asked by Frank Dobson when he was
Secretary of State for Health, to co-chair the External Reference Group
for the development of the National Service Framework (NSF) for Older
People, and, in 2000, was appointed by his successor, Alan Milburn, as
National Clinical Director for Older people to lead its completion and
implementation.
The NSF for Older People was the first NSF to
apply to social care as well as health. It followed NSF’s in Coronary
Heart Disease, Mental Health and the NHS Cancer Plan. Concurrently,
quality standards and requirements were being set for the care home
sector, so the NSF focussed particularly on domiciliary social care, the
NHS, and the interface between health and care services.
The breadth of the NSF for Older People created
an implementation challenge which was different from other NSF’s. There
was not only the challenge of including health and care systems, but
also about addressing the wide range of needs of people aged 50 plus,
and adults with old age-related conditions. These included the general
population of people aged 50 plus, for whom the NSF set standards for
disease prevention and for promoting health, independence and
well-being. At the other extreme, the NSF set standards for people with
multiple conditions requiring complex service interventions, at high
risk of death, hospitalisation or care home placement, whose carers
often had high levels of need.
The NSF also covered some major old age-related
conditions such as stroke, falls and fractures and dementia, setting
standards for all adults with these conditions. Each of these conditions
is associated with very high costs of care and considerable impact on
people’s lives, and each could have warranted an NSF in their own right.
The NSF also addressed the needs of a group in
the population who sit between the general population of older people
and those with established complex needs. This “at risk” group, set a
challenge for primary health and care services to improve early
identification and response to needs: including addressing issues which
older people’s advocacy groups identified as important to older people
and their families; vision, hearing, oral health, foot-care, continence,
depression and social isolation. The needs of family carers, and the
specific needs of some black and minority ethnic groups were embedded in
each of the NSF standards.
The NSF for Mental Health had been developed for
adults age 16-65, so the NSF for Older People was expected to set
standards for mental health for older adults. This split caused some
difficulties in ensuring equitable investment in services for older and
younger adults and in ensuing access to services was determined by need,
without age as a barrier to receiving care. This was addressed later by
developing a vision for adult mental health (Philp & Appleby,
2005), which emphasised the need to invest in services for old-age
related mental health needs, but ensure that age was not a barrier in
accessing mental health services. The vision also aligned investment in
underpinning programmes including information systems for benchmarking,
workforce development and support for service improvement.
NSF Development
I have previously reported in this Journal how we
developed the NSF for Older People (Philp, 2003). It was organised
around three themes, which I think are still valid and relevant:
- culture change
- system change
- promoting healthy ageing
Culture Change
Politicians recognised the need for culture
change and wanted to respond to public concerns about age discrimination
and lack of respect for the dignity of older people receiving care.
These concerns are felt most amongst the middle aged children and
grandchildren of older people, many of whom could report a negative
experience of care amongst their older relatives.
System Change
System change was required to improve efficiency
and effectiveness of health and care services for people with old
age-related conditions. This was directed particularly to reducing the
unnecessary use of acute hospital care through avoiding inappropriate
admission and reducing delayed discharge.
Promoting Healthy Ageing
Older people were most concerned to maintain
their health, independence and well-being, and not be a burden to their
families, so the political offer to older people was to increase access
to services which help promote healthy ageing.
NSF Implementation
During the early phase of implementation, the NSF
was a top national policy priority, with a strong infrastructure for
supporting implementation, which included local champions,
implementation teams and change agents, regional task forces, a national
task force, a national older people’s and carer’s reference group, and a
large policy team. Ring-fenced money was available to pump-prime
investment in intermediate care services which bridge the gap between
hospital and home. A lot of early progress was made in removing
age-based barriers for NHS preventative and treatment services and in
developing intermediate care services.
In 2003, the Department narrowed its top
priorities to improving access to primary care services, elective
hospital care and waiting times during emergency response, and improving
standards of care in Coronary Heart Disease and Cancer. At the same
time, the NHS underwent a major structural reorganisation. Many regional
and local NSF implementation teams were disbanded.
It became imperative to regain national priority
for the NSF for Older People. It was important to demonstrate to
Ministers that it was possible to improve older people’s care, and that
the Government could take pride in such success as we had had in the
early implementation of the NSF. I concentrated policy support on
reviewing progress and identifying gaps. Our findings were reported in
“Better Health in Old Age” (Philp, 2004) which caught the attention of
the Permanent Secretary in the Department of Health, Nigel Crisp, and
the Prime Minister. Tony Blair launched the Report. Following this, the
status of the NSF was raised within the Department and with the service.
In order to strengthen levers for system reform
in the care of frail older people and for people with old age-related
conditions, we developed alliances with other National Clinical
Directors and their policy teams. Roger Boyle and the vascular team put
their weight behind improving services for people with stroke. Mike
Richards and the cancer team did so for extending best practice in end
of life care from cancer to other groups, particularly for frail older
people dying in general hospitals and care homes. Louis Appleby and the
mental health team did so for older adult mental health, particularly
for people with dementia. George Alberti and the emergency reform team
worked with us to produce guidance for emergency response for older
people with falls, fractures and confusional states. The Chief Nursing
Officer, Chris Beesley, committed resources from her team to promote
dignity in care. These powerful alliances helped drive reforms which
could not have been accomplished by the older people’s team alone.
Progress
We have seen a number of improvements in older
people's health and care since 2001. Age-based barriers in access to
treatments and services in much of the NHS have been removed. Ensuring
dignity in care is now a top priority in performance management,
inspection and regulation in health and care settings, as well as being
widely discussed in the media. Older people and their carers are
becoming more empowered through greater use of direct payments and
personalised budgets.
Improvements to community health and care
services are supporting many more older people to live at home who would
otherwise require long-term institutional care, and have helped reduce
delayed discharge from hospital. All hospitals treating people with
strokes now have dedicated stroke units, and early death from stroke in
England is now amongst the lowest in the world. Further improvements
will be made following the implementation of the National Stroke
Strategy.
We should also see a step-change in dementia care
with the publication and implementation of the National Dementia
Strategy. End of life care for older people has been improved through
the use of tools, adapted from cancer care and now widely used to
support best practice in end of life care for older people in hospitals
and care homes.
Some of the biggest improvements in disease
prevention have been amongst older people in areas such as vaccination
programmes, smoking cessation, blood pressure control, and cancer
screening. Current and future generations of older people will benefit
from changes to diet, exercise, and alcohol and tobacco consumption if
our work with consumer media to encourage behavioural change in middle
life is successful.
These changes were made possible through partnership working at all levels in the system.
The Next Three Years
In the next and last phase of NSF implementation,
some priorities are well established. These include empowerment of
service users and families through greater use of personalised budgets
and direct payments, and improved dementia care with a National Dementia
Strategy and Implementation Plan to be published in late 2008.
We are three years into our five year programme
to promote dignity in care. Foundations are in place through increased
awareness and championing, and stronger inspection and regulation. More
will be needed to strengthen user and carer feedback systems to drive
quality improvement at local levels, and to support workforce
development (particularly early work experience) for all staff groups
involved in the care of older people.
In “A Recipe for Care” (Philp, 2007) we described some of the actions needed for system reform in the next few years:
a) Early response to old age related conditions
relating to: vision, hearing, continence, foot care, oral health,
mobility and mental health (depression, anxiety, loneliness,
bereavement, alcohol abuse).
b) Emergency response with streaming to
specialist care for older people with falls, fragility fractures and
confusion/delirium.
c) Better in-hospital care for older people with
complex needs, with simple rules for risk management and specialist
involvement, especially for older people with mental health problems in
general acute hospitals, or physical health problems in mental health
hospitals.
d) Early supported discharge in the community,
including use of intermediate care services to undertake comprehensive
assessment and care-planning prior to care home placement or continuing
support to live at home.
e) Spreading best practice in partnership and integrated working.
Now that the NHS has settled into its new
structures with better alignment with local government, there is an
opportunity to develop and implement local strategies to promote the
health and well-being of all older people and to reach out to
marginalised groups of older people, (including those who are isolated,
poor, those with mental, physical or sensory deprivation, and some black
and minority ethnic groups). This work should be led by local
government with support from the independent sector, the NHS and older
people’s groups.
Conclusion
It has been an extraordinary privilege, and a big
challenge, to provide national leadership to help improve the health
and care of older people. I hope my approach has helped move policy and
practice from the margin to the mainstream and raised priority and
attention to the needs of older people and their carers.
We have been fortunate to have had a prolonged
period of national attention to older people’s needs using the
organising framework of the NSF. The programme will need ongoing
leadership and refreshment as the challenge of responding best to an
ageing population will only increase as we live longer.
References
Philp, I. (2001). National service framework for older people. London: Department of Health.
Philp, I. (2003). The development and implementation of the national service framework for older people’s services. Generations Review, 13, 24-25.
Philp, I. (2004). Better health in old age. London: Department of Health.
Philp, I. (2007). A recipe for care – Not a singe ingredient. London: Department of Health.
Philp, I., & Appleby, L. (2005). Securing better mental health for older adults. London: Department of Health.